How many people have MSA in Australia?
It is a progressive condition which means the symptoms tend to get worse over time. Multiple System Atrophy affects approximately 4.4 per 100,000 people.
How can I help someone with MSA?
Talk to your doctor, friends, or family if you need assistance. Also the MSA Support Group is available to listen and offer advice, just call our number (866) 737-5999 and there are local Support Groups around the country. Avoid feeling guilty: It is not selfish to put your needs first sometimes.
Is MSA classed as a terminal illness?
Because MSA is at this time a terminal disease with mean patient survival of 6 to 10 years after the onset of symptoms, patients and families should begin to make decisions regarding advanced directives, finances, hospice care, and the possibility of brain donation, if so desired.
What is multiple system atrophy ( MSA ) in Australia?
This information was produced by PSP Australia in colloboration with Parkinson’s Victoria. It is intended as a guide and you should discuss all symptoms and health issues with your neurologist and health workers. Multiple System Atrophy (MSA) is a rare neurological (brain) condition.
What does defeat multiple system atrophy Australia and New Zealand do?
Defeat Multiple System Atrophy Australia and New Zealand is an inclusive organisation that seeks to serve all people with MSA and their carers in Australia and New Zealand. It aspires to balance efforts to support patients, educate medical professionals, raise public awareness and nurture promising research.
What do you need to know about multiple system atrophy?
DESCRIPTION. Multiple System Atrophy (or Shy-Drager Syndrome) (SDS)(MSA) is a a rare degenerative condition resulting from degeneration of certain nerve cells in the brain and spinal cord. Body functions controlled by these areas of the brain and spinal cord do not function normally in sufferers.
What does the shoe do for MSA research?
The Shoe is a tool for spreading MSA awareness, increasing support for MSA patients and their caregivers and fighting MSA by raising vital research dollars. It’s journey is undertaken in memory of all those that have died due to MSA and in support of all those presently fighting Multiple System Atrophy!