Is Klippel-Trenaunay life threatening?
Klippel-Trenaunay syndrome (KTS) is a rare congenital syndrome of vascular malformations and soft tissue and bone hypertrophy. Vascular malformations can affect multiple organ systems. Involvement of the gastrointestinal (GI) tract is uncommon in KTS, but it can be a source of life-threatening bleeding.
Does Klippel-Trenaunay syndrome get worse with age?
In people with Klippel-Trenaunay syndrome, the port-wine stain usually covers part of one limb. The affected area may become lighter or darker with age.
Is Klippel-Trenaunay syndrome a disability?
If you or your dependent(s) are diagnosed with Klippel-Trenaunay Syndrome and experience any of these symptoms, you may be eligible for disability benefits from the U.S. Social Security Administration.
Is Klippel-Trenaunay syndrome progressive?
There is no cure for KTS, and it is a progressive condition. The most effective way to manage the disease is to treat your child’s symptoms.
Is there a cure for Klippel-Trenaunay?
Although there’s no cure for Klippel-Trenaunay syndrome, your doctor can help you manage symptoms and prevent complications.
Are you born with Klippel-Trenaunay Syndrome?
Klippel-Trenaunay syndrome (KTS) is a rare disorder that is present at birth (congenital) and is characterized by a triad of cutaneous capillary malformation (“port-wine stain”), lymphatic anomalies, and abnormal veins in association with variable overgrowth of soft tissue and bone.
Are kts curable?
There is no cure for Klippel-Trenaunay syndrome (KTS). Treatment aims to improve your child’s mobility, prevent infections or complications and manage pain and other symptoms.
Are KTS painful?
Symptoms and severity of KTS vary for each patient. Symptoms can include bleeding from the affected limb, a skin infection, blood in the urine, or rectal/vaginal bleeding. You could experience pain in the limb, blood clots, anemia and seizures.
How common is Klippel Trenaunay Syndrome?
How does Klippel-Trenaunay Syndrome affect the circulatory system?
Varicose veins can cause major pain and skin ulcers due to poor circulation. Deeper abnormal veins can increase the risk of blood clots (deep vein thrombosis) and cause a life-threatening condition called pulmonary embolism if they dislodge and travel to the lungs.